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Patients, Carers and the Public

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Patients, carers, and the public are essential to our work. They support us by:

  • Taking part in research trials
  • Working in partnership with researchers and healthcare professionals to improve the quality and relevance of our research
  • Making sure research is acceptable and will benefit others
  • Letting us know what it was like to be involved in research so we can continue to improve participant experience 

Involving patients, carers and the public means we can deliver high quality research that is relevant to the health and social care needs of our diverse nation.

Take a look at the opportunities below to find out how you can get involved locally.

Be Part of Research

Be Part of Research makes it easy for the public to learn about UK health and social care research. Anyone can search for ethically-approved studies and ask to take part. There are studies for people living with a condition, as well as those who may be healthy. The service also features the latest research findings from reliable sources. Visit www.bepartofresearch.uk to find out more. 

 

 

In 2018/19, a record 52,305 participants took part in research studies across the Wessex region, more participants than ever before. Hear from some of those who took part and find out why they're encouraging more people to be part of research.

 

Research Champions

Research Champion is someone who volunteers their time to engage with the public and promote research from a patient point of view. Research Champions are keen to share the benefits of health and social care research and play an active part in its development. They could be a patient, service user, carer or lay person who is enthusiastic about health research and willing to communicate this to others.

Across Wessex, Research Champions make sure people and researchers work well together to produce excellent research. In Wessex, Research Champions are also known as Patient Research Ambassadors (PRAs). 

To find out more about becoming a Research Champion, please get in touch:

Telephone: 01489 771027

Email: kim.appleby@nihr.ac.uk 

Participant in Research Experience Survey

Participant experience is a key part of research delivery. Understanding the experience of participants and the reasons why people decide to take part in research helps to improve processes for all involved. Every year, CRN Wessex carries out a survey of people who have taken part in research. 400 research participants from across Hampshire, Dorset & the Isle of Wight returned responses to the 2018/19 survey. The responses showed:

  • 96% of participants surveyed had a good experience of taking part in the research study.
  • 96% of participants surveyed would recommend taking part in research to others.

We are currently analysing the responses from our 2019/20 survey and will be able to share these shortly. For more information about the survey and for details on how to take part, please get in touch:

Telephone: 01489 771027

Email: kim.appleby@nihr.ac.uk 

Join Dementia Research

Join Dementia Research is a service which allows people to register their interest in participating in dementia research and be matched to suitable studies. The service delivers new opportunities for people to play their part in beating dementia; connecting researchers with people who want to participate in studies.