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Patients, Carers and the Public

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Patients, carers, and the public are essential to our work. They support us by:

  • Taking part in research trials
  • Working in partnership with researchers and healthcare professionals to improve the quality and relevance of our research
  • Making sure research is acceptable and will benefit others
  • Letting us know what it was like to be involved in research so we can continue to improve participant experience 

Involving patients, carers and the public means we can deliver high quality research that is relevant to the health and social care needs of our diverse nation.

Take a look at the opportunities below to find out how you can get involved locally.

 

 

 

 

 

 

 

 

Would you like to get involved in health and care research?

Every minute in the UK, someone is diagnosed with a disease or a condition. The
treatment and support they will receive will, at some point, have been informed by
research. Whether it’s testing a new medicine, a new surgery procedure or scan, or
trying healthier lifestyle choices to prevent disease, everyone has an important role to
play – if they want to.

There are lots of different types of research. Research usually involves examining and
observing people with different conditions and sometimes comparing them with
people who don't have the condition. It can also involve research on samples of blood
or other tissues, or tests such as scans or X-rays. Sometimes it might involve surveys or
interviews.

Be Part of Research

Be Part of Research is a service that makes it easy for the public to learn about and
search for research studies. Discover how research studies are designed, what
happens when you decide to take part and the importance of taking part. You can:

● Use the search tool to find current research studies happening right now
● Find studies taking place near you
● Filter results easily by age, health condition etc
● Use the site on desktop or mobile
● Download, save or print the full study details so you can talk to your doctor,
nurse or healthcare professional.

Once you’ve found a study, you can see all the details including who to contact and ask
to take part.

Whether you have been diagnosed with a condition or not, everyone can take part in
research. Find a study that’s right for you.

Find studies in:

 

In 2018/19, a record 52,305 participants took part in research studies across the Wessex region, more participants than ever before. Hear from some of those who took part and find out why they're encouraging more people to be part of research.

 

Research Champions

Research Champion is someone who volunteers their time to engage with the public and promote research from a patient point of view. Research Champions are keen to share the benefits of health and social care research and play an active part in its development. They could be a patient, service user, carer or lay person who is enthusiastic about health research and willing to communicate this to others.

Across Wessex, Research Champions make sure people and researchers work well together to produce excellent research. In Wessex, Research Champions are also known as Patient Research Ambassadors (PRAs). 

To find out more about becoming a Research Champion, please get in touch:

Telephone: 01489 771027

Email: kim.appleby@nihr.ac.uk 

Participant in Research Experience Survey

Participant experience is a key part of research delivery. Understanding the experience of participants and the reasons why people decide to take part in research helps to improve processes for all involved. Every year, CRN Wessex carries out a survey of people who have taken part in research. 400 research participants from across Hampshire, Dorset & the Isle of Wight returned responses to the 2018/19 survey. The responses showed:

  • 96% of participants surveyed had a good experience of taking part in the research study.
  • 96% of participants surveyed would recommend taking part in research to others.

We are currently analysing the responses from our 2019/20 survey and will be able to share these shortly. For more information about the survey and for details on how to take part, please get in touch:

Telephone: 01489 771027

Email: kim.appleby@nihr.ac.uk 

Join Dementia Research

Interested in taking part in dementia research studies?

Register with Join Dementia Research so that you can be told when a study starts in
your area and the researchers are looking for people just like you. There's no
obligation to take part in any study, but by registering, you’ll find out when new
opportunities become available. The service is delivered in partnership by the NIHR,
Alzheimer’s Research UK, Alzheimer's Society and Alzheimer Scotland.