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Patient and Public Involvement and Engagement Plan Summary

Published: 04 January 2024
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Contents

Purpose

  • To clearly lay out a set of actions to improve patient and public involvement and engagement within the Clinical Research Network Wessex
  • The time frame for this is April 2023 to September 2024
  • It will be a living document that evolves over time and informs the joint plan with Thames Valley for 2024/2025
  • It will complement the other plans within the network to embed patient and public involvement and engagement e.g. for clinical delivery and communities under-served by research

Principles

  • Transparency
  • Meaningful and impactful patient and public involvement and engagement embedded in everything
  • ‘Parity of participation’ between the researcher and patient, equality and representativeness including access for under-served communities
  • Integral that patients and public have a voice and feel listened to and that their input informs research

Aims and Objectives

Aim: to embed patient and public involvement and engagement throughout the work of the network to ensure research is patient-centred (as well as clinically informed and scientifically sound)

Objectives:

  • Raise awareness of the importance of patient and public involvement and engagement and the support required
  • Ensure communications and its outcomes are accessible to everyone
  • Encourage patient advocacy in recruitment of research participants
  • Deliver the national expectations

What we are doing

Objective 1 - Raise awareness of the importance of patient and public involvement and engagement and the support required

  1. Include patient and public involvement and engagement as an agenda item at relevant meetings
  2. Include Public Contributor representation at relevant meetings
  3. Involve Public Contributors in the staff recruitment process
  4. Involve Public Contributors more within the team
  5. Provide training on patient and public involvement and engagement

Objective 2 - Ensure communications about research and its outcomes are accessible to everyone

  1. Communicate this plan
  2. Co-produce communication materials with Public Contributors to ensure they are accessible
  3. Share research findings with the public
  4. Promote research through Awareness Days

Objective 3 - Encourage patient advocacy in recruitment of research participants

  1. Develop impact stories
  2. Scoping work around the patient voice and identify opportunities where might be most successful
  3. Test patient and public involvement and engagement in recruitment strategies with the Clinical Delivery Team/Hubs/Buses
  4. Ensure meaningful patient and public involvement and engagement in research coming through the Study Support Service, Technology Support Programme, Hubs/Buses, small grant schemes etc
  5. Encourage user led research within Wessex-led studies

Objective 4 - Deliver the national expectations

  1. Participant in Research Experience Survey
  2. Research Ready Communities initiative
  3. Engagement activities
  4. Increase awareness and engagement with Be Part of Research and Join Dementia Research
  5. Support the Research Champions initiative within partner organisations

 

This plan was co-produced with Public Contributors. 
For more information email comms.crnwessex@nihr.ac.uk