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Patients, Carers and the Public

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The Network is committed to actively involving and engaging patients, carers and the public in all aspects of its activity in order to improve the delivery of clinical research in the NHS and beyond. 

Patient and Public Involvement and Engagement (PPIE) representatives and Research Champions work with teams across the region to  support research delivery and raise awareness of opportunities to be involved in research. PPIE initiatives include:

  • Contributing to NIHR campaigns such as International Clinical Trials Day (20 May)
  • Gathering feedback from research participants
  • Providing learning and development opportunities for patients, carers, the public and research staff

Be Part of Research 

Be Part of Research is an online service which helps people understand what research is, what taking part might involve, as well as helping people find studies and volunteer to take part. You can use the search tool to look for current UK research investigating illnesses or conditions that are of interest to you, or to find studies that may be taking place near to where you live. Once you’ve found a study, you can see all the details including who to contact so you can ask to take part.  You can also download, save or print the full study details so you can talk to your doctor, nurse or healthcare professional. Find out more on the website.

 

 

Research Champions

Our Research Champions, including members of the Young Persons' Steering Group, work with teams across the region to improve research delivery, awareness and opportunities for the public to be involved in research in the West Midlands.  In 2018/19, there were 106 Research Champions in our region - the most of any region in England.  For more information on becoming a Champion, contact mohammed.shaikh@nihr.ac.uk.

Read a profile of Research Champion Anne.

Participant in Research Experience Survey

Our Participant in Research Experience Survey is currently underway (as of November 2019). You can ask your Consultant, Doctor, Nurse or GP for a copy if you would like to take part or you can do so online. Your feedback will help us to make future studies a better experience for people who take part.