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Patients, Carers and the Public

Quick Links

We are proud to say that clinical research takes place in all hospital trusts across the region and patient and public involvement is key to all the research that takes place. New and better treatments and services become available because people take part in clinical research.

You can be involved in different ways

There are many different opportunities to take part in research, depending on your time commitments, and there are several ways to get involved.






 

 

 

 

 




Getting involved in research doesn’t always mean that you need to take part in a clinical trial. Clinical Research can also be carried out by, or with help from patients, carers and the public. Examples of this include:

  • providing advice and guidance to a clinical research study as a member of a project steering group
  • assisting healthcare professionals to develop research materials which might include patient and participant information sheets
  • identifying new topics for research and ensuring that topics are relevant to patients, carers and members of the public
  • making sure that researchers ask the right questions and in a way that the public understand

To find out about the different opportunities you can get involved with, use the red tabs below.

Be Part of Research




















Be Part of Research is a service that makes it easy for the public to learn about and
search for research studies. Discover how research studies are designed, what
happens when you decide to take part and the importance of taking part. You can:

● Use the search tool to find current research studies happening right now
● Find studies taking place near you
● Filter results easily by age, health condition etc
● Use the site on desktop or mobile
● Download, save or print the full study details so you can talk to your doctor, nurse or healthcare professional.

Once you’ve found a study, you can see all the details including who to contact and ask
to take part.

Whether you have been diagnosed with a condition or not, everyone can take part in
research. Find a study that’s right for you.

Interested in taking part in dementia research studies?

Register with Join Dementia Research so that you can be told when a study starts in your area and the researchers are looking for people just like you. There's no obligation to take part in any study, but by registering, you’ll find out when new opportunities become available. The service is delivered in partnership by the NIHR, Alzheimer’s Research UK, Alzheimer's Society and Alzheimer Scotland.

Contact us

If you would like to find out more about the opportunities to get involved please email nenccommunications@nihr.ac.uk

Research Champions

A Research Champion is a volunteer who wants to promote research in healthcare to other patients, members of the public, carers and to healthcare professionals. There’s no minimum ask or ongoing commitment and you can do as much or as little as you like, depending on how much time you have available.

Check out the Research Champions section of the NIHR website take a look at some of the things you may get involved in as a Research Champion.

You can also contact nenccommunications@nihr.ac.uk if you'd like to learn how you can become a Research Champion within the North East & North Cumbria.

Contact us

If you would like to find out more about the opportunities to get involved please email nenccommunications@nihr.ac.uk

PRES (Participant in Research Experience Survey)

PRES is one way the NIHR Clinical Research Network North East and North Cumbria (CRN NENC) gives participants an opportunity to tell us about their experience of research.

The CRN NENC has delivered a survey to research participants since 2016, and in October 2019 we launched a digital PRES project.

The benefits of offering digital methods of completing the survey include:

  • Easier and quicker to develop questionnaires and reduce administration costs
  • Real-time and more targeted information fed back to study teams, allowing for quick response
  • More opportunities to reach patients, families and the public

 

This will help the CRN to collect more real-time data, and this will be enable us to provide faster and more targeted feedback across the region.

Shown below is a short video for staff, outlining the purpose and steps of how to use the survey.

 

 

Further Digital PRES Staff Resources can be found on our intranet.

Contact us

If you would like to find out more about the opportunities to get involved please email nenccommunications@nihr.ac.uk