This site is optimised for modern browsers. For the best experience, please use Google Chrome, Mozilla Firefox, or Microsoft Edge.

Beta

This is a new site which is still under development. We welcome your feedback, which will help improve it.

Feedback form

Patients, Carers and the Public

Every day thousands of patients, carers and the public go the extra mile to help the NIHR make research happen. There are many ways you can join in and be part of research. 

What is research?

Research is needed for all common and rare conditions. It is only through research that we can develop better treatments, as well as improve diagnosis, prevention, care and quality of life for everyone.

There are different types of research and every study is different. Researchers will explain what's involved in their study before you decide you want to take part. 

Why take part?

People enjoy being part of health or social care research for a number of reasons: 

  • You could help to improve health and social care for others, as well as giving hope for future generations.
  • You might learn more about your condition.
  • Your health may be monitored more regularly.
  • If you have an illness or condition, you might be able to try a new treatment or device.
  • You will help researchers learn important new information.

 

Be Part of Research

Be Part of Research is a website created by the NIHR which aims to connect members of the public with all of the information they need to take part in and support health and care research in England. You can use the website to search for recruiting health and care studies by their location and disease type. 

You can use the link below to find studies in Yorkshire:

 

Research Champions

Research Champions are people who volunteer their time to help spread the word about health and care research to patients and the public, and especially to those groups who are currently less likely to take part in research. They also help research and healthcare staff understand more about the experiences of those who take part in research. 

What can Research Champions do?

The role of a Research Champion can vary depending on the interests, skills and time of the volunteer. Some commit to regular activities, while others may volunteer as opportunities arise. Research champions may volunteer to get involved in:

  • Talking to patients and the public about health and care research e.g. by giving talks, hosting coffee mornings, visiting health services
  • Raising awareness amongst friends and family about research and being a champion
  • Promoting the Be Part of Research campaign to patients and helping people to find out about the research studies they can take part in 
  • Promoting the Join Dementia Research website and the importance of dementia research to the public 
  • Visiting local health and care organisations to tell people about health and care research and encouraging them to engage with local research teams 
  • Taking part in local actions to mark International Clinical Trials Day and health awareness days
  • Writing about their experiences of participating in health and care research to share with the NIHR or other platforms
  • Speaking to interest or patient groups about health and care research

How can I get involved?

If you are interested in becoming a Research Champion or finding out more, then get in touch with the team at ppie.crnyorkshumber@nihr.ac.uk.

 

 

Participant in Research Experience Survey (PRES)

The PRES is a set of questions that we conduct in collaboration with our partner organisations to understand and evaluate the experience of people taking part in research. The questionnaire is conducted every year to help us to understand more about the experience of clinical research patients across our region. All responses are anonymous.

The results help us to identify positive patient experiences, as well as highlight areas for development and improvement.  

Our 2019/20 survey is currently underway.

Last year's results

 We had responses from 630 research participants - that's 26% more than the year before! Of those surveyed, 82% said they had a good experience of participating in research.

Contact us

If you have any queries regarding the PRES, contact Evie Chandler via ppie.crnyorkshumber@nihr.ac.uk or on 0113 206 0467

Find out more at www.joindementiaresearch.nihr.ac.uk

Join Dementia Research 

Dementia is one of the biggest challenges we face today. The number of people with Alzheimer's disease, vascular dementia, and other types of dementia is set to double over the next 30 years. Research offers hope. It is only through research that we can understand what causes the disease and develop effective treatments, improve care and one day find a cure. 

Join Dementia Research is a service which allows people to register their interest in participating in dementia research and be matched to suitable studies. The service delivers new opportunities for people to play their part in beating dementia, connecting researchers with people who want to participate in studies.

To find out more about how you can get involved in dementia research, and to register to be part of the service, visit the Join Dementia Research website.