Patients, carers, and the public are essential to our work. They support us by:
- Taking part in research trials
- Working in partnership with researchers and healthcare professionals to improve the quality and relevance of our research
- Making sure research is acceptable and will benefit others
- Letting us know what it was like to be involved in research so we can continue to improve participant experience
Involving patients, carers and the public means we can deliver high quality research that is relevant to the health and social care needs of our diverse nation.
Sign up to our public newsletter to find out more about research in the West of England.
Be Part of Research makes it easy to learn about UK health and social care research. Anyone can search for ethically-approved studies and ask to take part. There are studies for people living with a condition, as well as those who may be healthy. The service also features the latest research findings from reliable sources. Visit www.bepartofresearch.uk to find out more.
In the West of England, public involvement has been going on in academic research and in service improvement for many years. People in Health West of England (PHWE) work to embed public involvement in research, and are linked with key regional networks as core partners, including NIHR CRN West of England. PHWE aim to make improvements not just in patient involvement in research but also service improvement and commissioning.
Visit PHWE's website to find out more about how to promote research opportunities to members of the public.
19 July 2021
Phase 3 of the Valneva vaccine study opened in Bristol in April 2021. The vaccine is the only inactivated, adjuvanted COVID-19 vaccine in clinical development in Europe. Will is one of the volunteers taking part in the study. This is his story of taking part in research.
01 June 2021
Nicky Hayward, 60, from Bath, is one of the participants taking part in the FLAIR study, a randomised trial comparing treatments containing the drug ibrutinib with standard treatment for chronic lymphocytic leukaemia (CLL). She tells us about her experience.
20 May 2021
Grahame Priest took part in the Precision-Panc trial after he was diagnosed with pancreatic cancer. He was treated at University Hospitals Bristol and Weston NHS Foundation Trust. This is his story of taking part in research.
07 December 2020
Helen, from Westbury-on-Trym, is one of the new mothers who took part in the ASSIST trial at North Bristol Trust. She tells us about her experience.
25 November 2020
Christine Bath from Bristol, signed up for the PRINCIPLE study in April 2020 through her GP practice, Westbury on Trym Surgery. She tells us about her experience of taking part.
A Research Champion is someone who volunteers their time to engage with the public and promote research from a patient point of view. Research Champions are keen to share the benefits of health and social care research and play an active part in its development. They could be a patient, service user, carer or lay person who is enthusiastic about health research and willing to communicate this to others.
Research Champions ensure people and researchers work well together to produce excellent research.
Please get in touch to find out more about Research Champions.
Participant experience is a key part of research delivery. Understanding the experience of participants and the reasons why people decide to take part in research helps to improve processes for all involved. Every year, CRN West of England conducts a survey of people who have taken part in research.
Read more about the Participant in research experience survey (PRES).
People interested in taking part in Dementia research can register on the Join Dementia Research site and potentially be matched to suitable studies. Study teams and researchers can access this register and get in touch with suitable participants. For more information visit the Join Dementia Research website