This site is optimised for modern browsers. For the best experience, please use Google Chrome, Mozilla Firefox, or Microsoft Edge.

Patients, Carers and the Public

Quick Links

We recruit thousands of people to studies in the West of England every year, working with patients, carers and the public to improve the quality and relevance of our research. Patient and Public Involvement and Engagement (PPIE) is essential to research, read more below about how we can help support you and your study.

 

Patients, carers, and the public are essential to our work. They support us by:

  • Taking part in research trials
  • Working in partnership with researchers and healthcare professionals to improve the quality and relevance of our research
  • Making sure research is acceptable and will benefit others
  • Letting us know what it was like to be involved in research so we can continue to improve participant experience 

Involving patients, carers and the public means we can deliver high quality research that is relevant to the health and social care needs of our diverse nation.

Sign up to our public newsletter to find out more about research in the West of England

Be Part of Research

Be Part of Research makes it easy to learn about UK health and social care research. Anyone can search for ethically-approved studies and ask to take part. There are studies for people living with a condition, as well as those who may be healthy. The service also features the latest research findings from reliable sources. Visit www.bepartofresearch.uk to find out more.

 

People in Health West of England (PHWE)

In the West of England, public involvement has been going on in academic research and in service improvement for many years. People in Health West of England (PHWE) work to embed public involvement in research, and are linked with key regional networks as core partners, including NIHR CRN West of England. PHWE aim to make improvements not just in patient involvement in research but also service improvement and commissioning.

Visit PHWE's website to find out more about how to promote research opportunities to members of the public.

 

    ""

    Nicky Hayward: The FLAIR study

    01 June 2021

    Nicky Hayward, 60, from Bath, is one of the participants taking part in the FLAIR study, a randomised trial comparing treatments containing the drug ibrutinib with standard treatment for chronic lymphocytic leukaemia (CLL). She tells us about her experience.

    ""

    Grahame: Precision-Panc

    20 May 2021

    Grahame Priest took part in the Precision-Panc trial after he was diagnosed with pancreatic cancer. He was treated at University Hospitals Bristol and Weston NHS Foundation Trust. This is his story of taking part in research.

    ""

    Helen: The ASSIST trial

    07 December 2020

    Helen, from Westbury-on-Trym, is one of the new mothers who took part in the ASSIST trial at North Bristol Trust. She tells us about her experience.

    ""

    Christine Bath: PRINCIPLE trial

    25 November 2020

    Christine Bath from Bristol, signed up for the PRINCIPLE study in April 2020 through her GP practice, Westbury on Trym Surgery. She tells us about her experience of taking part.

    ana-hobbs-smiling

    Ana Hobbs: The Cleft Collective

    28 July 2020

    Ana Hobbs, whose daughter was born with a soft cleft palate, is a member of the Patient Consultation Group and Advisory Board for the Cleft Collective research programme.

Research Champions

A Research Champion is someone who volunteers their time to engage with the public and promote research from a patient point of view. Research Champions are keen to share the benefits of health and social care research and play an active part in its development. They could be a patient, service user, carer or lay person who is enthusiastic about health research and willing to communicate this to others.

Research Champions ensure people and researchers work well together to produce excellent research.

Please get in touch to find out more about Research Champions.

Research Participant Experience Survey

Participant experience is a key part of research delivery. Understanding the experience of participants and the reasons why people decide to take part in research helps to improve processes for all involved. Every year, CRN West of England conducts a survey of people who have taken part in research.

Read more about the Patient Research Experience Survey (PRES).

Join Dementia Research

People interested in taking part in Dementia research can register on the Join Dementia Research site and potentially be matched to suitable studies. Study teams and researchers can access this register and get in touch with suitable participants. For more information visit the Join Dementia Research website