
Mother wants sickle cell research to change Londoners’ lives
27 July 2023
A devoted mother with sickle cell disease wants to build a better world for others with the condition by supporting south London research.
Patients, carers and the public play a vital role in the research we support. Research relies on people volunteering their time to take part as research participants, and we recruit thousands of people to studies in south London every year.
Be Part of Research is a service that makes it easy for the public to learn about and search for research studies. Discover how research studies are designed, what happens when you decide to take part and the importance of taking part. You can:
Once you’ve found a study, you can see all the details, including who to contact and ask to take part.
Whether you have been diagnosed with a condition or not, everyone can take part in research. Find a study that’s right for you.
Find studies in:
If you’d like to discuss getting involved in research in south London, please contact our Patient and Public Interaction and Engagement Manager, Neha Modha, via crnsouthlondon@nihr.ac.uk
Register with Join Dementia Research so you can be told when a study starts in your area, and the researchers are looking for people like you. There's no obligation to take part in any study, but by registering, you'll be notified when new opportunities become available. The service is delivered in partnership by the NIHR, Alzheimer's Research UK, Alzheimer's Society and Alzheimer Scotland.
27 July 2023
A devoted mother with sickle cell disease wants to build a better world for others with the condition by supporting south London research.
13 July 2023
A devoted grandfather has spoken about how south London research has given him peace of mind regarding his increased risk of being diagnosed with cancer.
12 June 2023
Mercy Njoku shares her experiences from taking part in the HEAL-COVID research study. Find out how you can sign up for similar studies on Be Part of Research.
16 May 2023
A Londoner has spoken about why researchers need to consider people's lived experience of multiple health conditions when designing research studies.
07 November 2022
A woman with sickle cell disease is keen to deliver lasting change for the next generation through south London research.
Research Champions volunteer their time to help spread the word about health and care research to patients and the public, especially those groups who are currently less likely to take part in research. They also help research and healthcare staff understand more about the experiences of those who take part in research.
They are patients, carers, members of the public, people who have taken part in a research study before, as well as those who haven’t. Something that they all have in common is that they are passionate about getting more people involved in research so that we can develop better care and treatment for everyone.
What you contribute as a Research Champion will be shaped by your interests, skills and time. Some commit to regular activities, while others may volunteer as opportunities arise. Research Champions may volunteer to get involved in some of the activities listed below:
Contact our Patient and Public Interaction and Engagement Manager, Neha Modha, via crnsouthlondon@nihr.ac.uk if you’d like to discuss becoming a Research Champion for our region.
Understanding the experience of participants is a key part of research delivery. People's feedback and reasons for taking part in research help to improve processes for all involved. Every year, CRN South London seeks feedback from those who have taken part in research through the NIHR's Participant in Research Experience Survey (PRES).
You can complete the PRES survey via this Google Form. If you encounter any issues in completing the survey, please contact our Patient and Public Interaction and Engagement Manager, Neha Modha. She will provide you with an accessible alternative. You can also email Neha if you'd like a copy of any of our PRES reports.
Email: crnsouthlondon@nihr.ac.uk