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Patients, Carers and the Public

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Patients, carers and the public play a vital role in the research we support. Research relies on people volunteering their time to take part as research participants, and we recruit thousands of people to studies in south London every year.

Get involved in research

The NIHR’s Be Part of Research (BPoR) website enables patients, carers and the public to find and get involved in research

This website is the gateway to finding out about the latest research taking place across England.

Research helps us increase our knowledge about health and wellbeing. This is so we can:

• Provide life changing treatments
• Diagnose diseases earlier or more accurately
• Prevent people from developing conditions
• Improve health and care for generations to come
• Ensure everyone has a better quality of life

If you’d like to discuss getting involved in research in south London, please contact CRN South London Patient and Public Involvement and Engagement Lead, Robert Pleass at robert.pleass@nihr.ac.uk

Make a difference through research

Join Dementia Research is a national service, which helps people find dementia studies in their area. The service is open to people with dementia or anyone who is interested in taking part in dementia research. Lots of studies need people without a diagnosis of dementia for comparison.

You can register for the service online, by phone or by post.

Contact one of the following charity partner helplines for more details:

Alzheimer's Research UK: 0300 111 5 111
Alzheimer's Society: 0300 222 1122
Alzheimer Scotland: 0808 808 3 000

What are Research Champions?

Research Champions volunteer their time to help spread the word about health and care research to patients and the public, and especially those groups who are currently less likely to take part in research. They also help research and healthcare staff understand more about the experiences of those who take part in research.

They are patients, carers, members of the public, people who have taken part in a research study before, as well as those who haven’t. Something that they all have in common is that they are passionate about getting more people involved in research so that we can develop better care and treatment for everyone.

In November 2019, we hosted an event at Guy's Hospital for Research Champions across London, Kent, Surrey and Sussex.

What can Research Champions do?

What you contribute as a Research Champion will be shaped around your interests, skills and time. Some commit to regular activities while others may volunteer as opportunities arise. Research Champions may volunteer to get involved in some of the activities listed below:

• Talk to patients and the public about health and care research e.g. by giving talks, hosting coffee mornings or hosting stands within the local community, visiting health services
• Raise awareness amongst friends and family about research and being a champion for taking part in health and care research amongst people they know
• Promote the Be Part of Research campaign to patient, public groups and help people find out about research studies they can take part in
• Promote the Join Dementia Research website and the importance of dementia research to the public
• Visit local health and care organisations to tell people about health and care research and encourage them to connect with local research teams
• Take part in local actions to mark International Clinical Trials Day and health awareness days
• Write about their experiences of participating in health and care research to share with the NIHR or other platforms
• Speak to patient groups about health and care research

Contact CRN South London Patient and Public Involvement Lead Robert Pleass at robert.pleass@nihr.ac.uk if you’d like to discuss becoming a Research Champion for our region.

Your experiences can help to shape research

Participant experience is a key part of research delivery. Understanding the experience of participants and the reasons why people decide to take part in research helps to improve processes for all involved. Every year, CRN South London carries out a survey of people who have taken part in research.

You can complete the survey on SurveyMonkey, if you have any questions or comments please get in touch by contacting our Patient and Public Involvement and Engagement Lead Robert Pleass.

Email: robert.pleass@nihr.ac.uk 

Your experiences can help to shape research

Participant experience is a key part of research delivery. Understanding the experience of participants and the reasons why people decide to take part in research helps to improve processes for all involved. Every year, CRN South London carries out a survey of people who have taken part in research.

You can complete the survey on SurveyMonkey, if you have any questions or comments please get in touch by contacting our Patient and Public Involvement and Engagement Lead Robert Pleass.

Email: robert.pleass@nihr.ac.uk