Health and social care research simply couldn’t happen without people volunteering their time and commitment, either to be part of a study or to promote research.
Being involved in research doesn't always mean that you need to take part in a clinical trial or study. There are a number of ways you can support our work:
Be Part of Research is an online service that provides an opportunity to help members of the public understand what research is and what it might mean to take part, as well as showing what research is currently happening across the UK.
You can use the search tool to look for current UK research investigating illnesses or conditions that are of interest to you, or to find studies that may be taking place near to where you live.
For example, if you’re looking to take part in social care research, you can use the search bar to find relevant research studies currently looking for volunteers across the UK.
Once you’ve found a study, you can see all the details including who to contact so you can ask to take part. You can also download, save or print the full study details so you can talk to your doctor, nurse or healthcare professional.
20 May 2022
Robert Lane, 73, is a retired electrical engineer from Berkshire. Since being diagnosed with prostate cancer in 2015 he has taken part in several trials at the Royal Surrey NHS Foundation Trust in Guildford.
21 February 2022
Miriam Davey is Senior Critical Care Research Nurse at Maidstone and Tunbridge Wells NHS Trust in Kent. Miriam is also CRN Kent, Surrey and Sussex Speciality Research Lead for Anaesthetics, Perioperative and Pain.
08 February 2022
Natalie Akenzua-Sanderson from Surrey has been taking part in a national priority study into the use of antiviral treatments for COVID-19.
23 September 2021
Sisters Laura and Rebecca joined a study to increase surgical options for women who, like them, were diagnosed with the BRCA gene mutation.
11 June 2021
Sean Clark, 47 from Bognor Regis is a participant in the PLATFORM Trial (Planning treatment for oesophago-gastric cancer: a randomised maintenance therapy trial).
We have an active community of Research Champions across the region - volunteers who are enthusiastic about health research, and share their experiences with members of the public to help us to promote other ways people can be involved.
They do this by:
Research Champions are hosted by an individual NHS organisation, typically a hospital. These organisations will also support their Research Champions by providing training and mentoring.
If you are interested in becoming a Research Champion or finding out more, then get in touch with us at crnkentsurreysussex@nihr.ac.uk.
Read why patients and members of the public from across Kent, Surrey and Sussex have become Research Champions.
The Participant in Research Experience Survey (PRES) is a survey given to people who have taken part in NIHR health and care research to find out what their experience is like.
We share the results of the survey with people and organisations who deliver research, and together we look at ways to make experiences better for everyone.
We also use the results to tell people about the benefits of taking part in research, to encourage more people to get involved.
Between 1 April 2021 and 31 March 2022, 2,080 people completed the PRES survey. This is about 12% of people who took part in NIHR health and care research in Kent, Surrey and Sussex over this period. The proportion of participants completing the PRES has increased by 166% since the previous year.
The PRES asks people to share reflections on what was positive about their experience. These have been brought together in themes:
“The care from the staff from the start until present has been beyond what I would’ve expected. I’ve always been kept informed about any changes to the study and I am clear from eczema after 45 years.”
“The person who contacted me was friendly, bubbly and polite which really helped put me at ease. I really feel privileged to be able to participate in research that could make positive changes in the future.”
“An appointment by appointment outline - what to expect to happen & how long.”
“I would have preferred to have the blood test and collect the next batch of patches on the same day.”
We will work with our partners to look for ways to make sure that everyone has the opportunity to tell us what their experience was like.
We will support our partners to develop local plans to make experiences better.
We will work with our partners and other organisations to ensure that people who take part in research are informed and updated about the research that they take part in.
Would you like to share your experiences with us? If you would, please get in touch with our PRES lead Madeline Bell madeline.bell1@nhs.net.
If you live in Kent, Surrey and Sussex and have taken part in a research study please email crnkentsurreysussex@nihr.ac.uk for a form, or online link.
Join Dementia Research is a national service that makes it easy for anyone to take part in vital dementia research studies. People with dementia or memory problems, their carers and anyone who is interested can sign up.
Simply register your details and a researcher will be in touch when an appropriate study becomes available. You can decide whether to take part in individual studies, with no obligation.
If you would like some help registering on Join Dementia Research, please complete this form and someone from one of our charity partner helpdesks will call you back about Join Dementia Research. They usually call you back within ten working days and three attempts to contact you will be made.
