This site is optimised for modern browsers. For the best experience, please use Google Chrome, Mozilla Firefox, or Microsoft Edge.

Beta

This is a new site which is still under development. We welcome your feedback, which will help improve it.

Feedback form

Patients, Carers and the Public

Health research changes lives - and there are lots of opportunities to take part right here in Greater Manchester. It is through research that we develop better treatments, and improve diagnosis, prevention, care and quality of life for everyone.

How can I take part in research? 

Every minute in the UK, someone is diagnosed with a disease or a condition. The treatment and support they will receive will, at some point, have been informed by research. Whether it’s testing a new medicine, a new surgery procedure or scan, or trying healthier lifestyle choices to prevent disease, everyone has an important role to play – if they want to.

There are lots of different types of research. Research usually involves examining and observing people with different conditions and sometimes comparing them with people who don't have the condition. It can also involve research on samples of blood or other tissues, or tests such as scans or X-rays. Sometimes it might involve surveys or interviews.

You can ask your doctor, nurse or healthcare professional about clinical trials or other health and care studies that you may be suitable for. Or, you can use one of the NIHR’s online services to find a study you can take part in:

Be Part of Research 

Be Part of Research is a service that makes it easy for the public to learn about and search for research studies. Discover how research studies are designed, what happens when you decide to take part and the importance of taking part. You can:

  • use the search tool to find current research studies happening right now
  • find studies taking place near you
  • filter results easily by age, health condition etc
  • use the site on desktop or mobile
  • download, save or print the full study details so you can talk to your doctor, nurse or healthcare professional

Once you’ve found a study, you can see all the details including who to contact and ask to take part. Whether you have been diagnosed with a condition or not, everyone can take part in research. Find a study that’s right for you.

Join Dementia Research

Join Dementia Research is an NIHR nationwide service helping to accelerate vital dementia research in the UK. Working like a matchmaking service, simply register your details and a researcher will be in touch when an appropriate study becomes available.

People with dementia or memory problems, their carers and anyone who is interested can sign up. You can sign up online, over the phone or by post.

Dementia is one of the biggest challenges we face today. The number of people with Alzheimer's disease, vascular dementia, and other types of dementia, is set to double over the next 30 years.

Research offers hope. It is only through research that we can understand what causes the disease, develop effective treatments, improve care and hopefully one day find a cure. But for research to progress we need more people to take part in more studies.

Research for the Future 

Here in Greater Manchester, we have a service called Research for the Future which encourages people to take part in NHS health research.

Research for the Future has four ‘Help BEAT’ campaigns which invite people living with heart diseasekidney diseaserespiratory disease and diabetes to find out about research opportunities relevant to them.

Most of this research takes place in and around Greater Manchester and the North West of England. If you are living with any of the above conditions, we'd love for you to register

Why register? 

Many people who have health problems are interested in taking part in research but don’t know how to find out what is going on. At the same time, researchers are struggling to find people who want to take part in their studies. Research for the Future helps connect the two.

Taking part in any aspect of health research means you can help improve health care and treatments now and for future generations.

Joining Research for the Future means you agree we can send you information about health research that you may be suitable for. When you join, you will be asked for your contact details and some basic questions about your health condition. We use this information to keep you updated about research opportunities in your area.

You can register your details and join the campaign very easily online. Alternatively you can text the word research and your name to 81400 and a member of our team will call you to complete your registration over the phone. 

Which research studies can I take part in?

Research for the Future has lots of different types of research for you to take part in, including questionnaires, focus groups and trials of new treatments.

When a study is available in your area, we will contact you to let you know where it is taking place, what would be involved and how you can take part. We never pass your details to the researchers. If you are interested in taking part we will tell you how to contact the researcher. This means it is always your decision whether you take part in any research we tell you about.

Some research studies have very specific requirements, for example they may be looking for people with a particular medical history or who are taking certain medications. Other research opportunities such as focus groups may only need a few people. This means not everyone who volunteers for a study will be able to take part.

Taking part is completely voluntary. You can withdraw from a study or from Research for the Future at any time without it affecting your care.

The research team will always inform your GP if you take part in any clinical research.

Contact us

(t) 0161 206 3636 (e) research.future@srft.nhs.uk 

Write to:
Research for the Future
Salford Royal NHS Foundation Trust
1st floor, Summerfield House
Stott Lane
Salford, M6 8HD

Research Patient Experience Survey

Research is a partnership between participant and researcher. So every year we ask people who volunteered for health research to feedback on their experience so we can make improvements via our Patient Research Experience Survey (PRES). 

We recently finished our 2019/20 survey in February 2020. Patient responses are being analysed and the anonymous results will be shared soon. 

The questionnaire is conducted every year to understand more about the experiences of clinical research participants across our region. All responses are anonymous. Through the survey, we strive to give as many research participants as possible the chance to feedback on what went well for them and what could be improved.

Take part in the survey 

The survey will open for 2020/21 later in 2020. It is available in paper format and an online form. Anyone who has taken part in a clinical research study in Greater Manchester is welcome to complete the survey. 

If you fill in a paper form, please return the completed form to: Janet Eastwood, CRN Greater Manchester, Citylabs 1.0 (2nd floor), Nelson Street, Manchester, M13 9NQ. 

Last year's results 

In 2018/19, more than 820 responses were collected in Greater Manchester. The results showed that 88% of patients had a good experience of research and 83% of patients would happily take part in another study.

Contact us

Please contact Janet Eastwood, Head of Communications and Patient and Public Involvement (e) janet.eastwood@nihr.ac.uk (t) 0161 276 4646.

Research Champions

Patients, carers and the public are essential to our work. We could not do our work without their help and involving the public in our work is one of our key priorities.

A Research Champion is someone who promotes health and social care research from a patient's point of view. They could be a patient, service user, carer or member of the public who is enthusiastic about health research and wants to raise awareness amongst the public and healthcare professionals.

What does the role involve?

A key part of a Research Champion’s role is sharing their experience of being part of research. You can read a detailed description of the different things the role can involve. 

What's it like to be a Research Champion? 

Norman Hesketh-Hart enjoys being a Research Champion and is an active member of the scheme in Greater Manchester. He says:

"Being a Research Champion allows me to give something back by raising awareness of research. The more people who take part in research the better, because we are helping future generations."

Norman has told his full story about why he became a Research Champion.  

How to become a patient Research Champion

We are always looking to add to our group of local Research Champions in Greater Manchester. If you would like to become a champion or have a casual chat about what the role entails and how you can help, we would love to hear from you.

Please contact Janet Eastwood, Head of Communications and Patient and Public Involvement (e) janet.eastwood@nihr.ac.uk (t) 0161 276 4646.