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Patients, Carers and the Public

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Did you know there’s clinical research taking place at NHS and social care organisations near you, including your local GP practice? Patient and public involvement is central to all our studies and you could be part of research.

Getting involved in clinical research could give you...

•   A better understanding of your condition
•   Additional contact with your health professionals
•   A chance to contribute to better treatments

There are many ways you can get involved

Getting involved in research doesn't always mean that you need to take part in a clinical trial. Whether you're 8 years old or 80, you can help to make treatments and practices better for everyone by being the patient voice in research.

 

 

 

 

 

 

 

 

 

 

 

 

To help shape research we need you, as a member of the public, to get actively involved in projects with research organisations.

Examples of this include:

•   offering advice to research organisations within the NHS and social care as a member of a project steering group
•   helping to develop research materials
•   commenting on research information that's available to the public
•   interviewing people who are taking part in research

Be Part of Research

Be Part of Research makes it easy for the public to learn about UK health and social care research. Anyone, whether they have a condition or not, can search for ethically-approved studies, and ask to take part. Every volunteer makes a difference.

Why not visit www.bepartofresearch.uk to find out more or ask your nurse or doctor for more information.

 

Research Champions

A Research Champion is a volunteer who wants to promote research in healthcare to other patients, members of the public and to healthcare professionals. There's no minimum ask or ongoing commitment and you can do as much or as little as you like, depending on how much time you have available.

Become a CRN Eastern Research Champion

To find out more about Patient Research Ambassadors contact Anne Sykes, our Patient and Public Involvement Manager by calling 01603 287670 or emailing anne.sykes@nihr.ac.uk.

Participant Research Experience Survey

We conduct a Participant Research Experience Survey (PRES) every year so we can get our participants' views and the 2018/19 survey was the biggest year yet for the survey with 1,255 completed questionnaires. 15 out of the region's 17 NHS Trusts participated with 23 out of 30 specialties covered.

Responses included lots of fantastic feedback and participants found their overall experience of research to be very positive. Read the full report of the 2018/19 CRN Eastern PRES here or you can check out the shorter CRN Eastern PRES highlight report instead.