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CRN North East and North Cumbria PRES questions 2021/22

Contents

This document lists the Participant in Research Survey (PRES) questions for 2021/22. 

General adult survey questions

You have been asked to complete this survey because you have previously or are currently taking part in research supported by the National Institute for Health Research (NIHR), which funds and supports research in the NHS as well as public health and social care research.

Part of the role of the NIHR is about making research better so that people like you who take part have the best experience possible. We would value your feedback in this survey to help us do this.

Taking part in the survey is voluntary, you do not have to fill this form in. It generally takes up to five minutes to complete. Your answers will be shared anonymously with local research delivery teams and with the NIHR nationally to help improve research.

The information that I received about the research when I was invited to take part was easy for me to understand

Strongly agree - agree - neutral - disagree - strongly disagree - I don't remember

I feel I have been kept updated about the research

Strongly agree - agree - neutral - disagree - strongly disagree - it is too early to say

I know how I will receive the results of the research 

Yes - yes, to some extent - no

I know how to contact someone from the research team if I have any questions or concerns

Strongly agree - agree - neutral - disagree - strongly disagree

The researchers have valued my taking part in the research

Strongly agree - agree - neutral - disagree - strongly disagree

Research staff have always treated me with courtesy and respect

Strongly agree - agree - neutral - disagree - strongly disagree

I would consider taking part in research again

Strongly agree - agree - neutral - disagree - strongly disagree

How long have you been taking part in this research study?

Less than three months - at least three months but less than one year - at least one year but less than three years - three years or longer - not sure

What was positive about your research experience?

Free text box

What would have made your research experience better?

Free text box

Is this the first research study you have taken part in?

Yes - no

Who completed the survey?

The person taking part in the research - the person taking part in the research with someone else - someone else on behalf of the person taking part in the research

What is your year of birth?

0-15 - 16-24 - 25-34 - 35-44 - 45-54 - 55-64 - 65-74 - 75-84- 85+

What is your ethnic group? 

Asian/Asian British/Bangladeshi - Asian/Asian British/Indian - Asian/Asian British/Chinese - Asian/Asian British/Any other Asian background - Black/African/Caribbean/Black British/Any other Black/African/Caribbean background - Mixed/Multiple ethnic groups/White and Black Caribbean - Mixed/Multiple ethnic groups/White and Black African - Mixed/Multiple ethnic groups/White and Asian - Mixed/Multiple ethnic groups/Any other Mixed/Multiple ethnic backgrounds - White English/Welsh/Scottish/Northern Irish/British - White Irish - White Gypsy or Irish Traveller - White Any other White background - Prefer not to say - Not answered

0-6 year old survey questions

You have been asked to complete this survey because your child or a child you care for has taken part in research supported by the National Institute for Health Research (NIHR), which funds and supports research in the NHS as well as public health and social care research.

Part of the role of the NIHR is about making research better so that people who take part have the best experience possible. We would value your feedback in this survey to help us do this.

Taking part in the survey is voluntary, you do not have to fill this form in. It generally takes up to 5 minutes to complete. Your answers will be shared anonymously with local research delivery teams and with the NIHR nationally to help improve research.

The information that I received about the research when my child was invited to take part was easy for me to understand

Very easy - easy - neutral - hard - very hard - I don't remember

I feel I have been kept updated about the research

Strongly agree - agree - neutral - disagree - strongly disagree - it is too early to say

I know how I will receive the results of the research 

Yes - sort of - no

I know how to contact someone from the research team if I have any questions or concerns

Strongly agree - agree - neutral - disagree - strongly disagree

The researchers have valued my child taking part in the research

Strongly agree - agree - neutral - disagree - strongly disagree

Research staff always treated my child with courtesy and respect

Strongly agree - agree - neutral - disagree - strongly disagree

I would consider my child taking part in research again

Strongly agree - agree - neutral - disagree - strongly disagree

What was positive about your child’s research experience?

Free text box

What would have made your child’s research experience better?

Free text box

How long has your child been taking part in this research study?

Less than three months - at least three months but less than one year - at least one year but less than three years - three years or longer - not sure

Is this the first research study your child has taken part in?

Yes - no

Who is answering these questions?

The child - the parent or carer - both the child and the parent or carer together

7-11 year old survey questions

You are taking part in a research study. Thank you!

Research improves health for everyone. Will you tell us more about what it was like to take part in research? We want to know about what we’re doing well and things we can do to make taking part in research better.

You don’t have to answer these questions. You won’t be asked for your name or personal details. Anything you say will be kept private and no one will know which answers are yours.

This survey is for ages 7 to 11.

Was it easy or hard to understand the information you got at the start of the research?

Very easy - easy - neutral - hard - very hard - I don't remember

I knew what was happening during the research

Strongly agree - agree - neutral - disagree - strongly disagree

I know how I will get the results of the research

Yes - sort of - no

I know who to talk to if I have any questions about the research

Strongly agree - agree - neutral - disagree - strongly disagree

The research team made me feel valued

Strongly agree - agree - neutral - disagree - strongly disagree

The research team were always nice to me

Strongly agree - agree - neutral - disagree - strongly disagree

I would take part in research again

Strongly agree - agree - neutral - disagree - strongly disagree

What did we do well?

Free text box

What could we do better?

Free text box

How long have you been in the research?

Less than three months - at least three months but less than one year - at least one year but less than three years - three years or longer - not sure

Is this the first research study you have taken part in?

Yes - no

Who is answering these questions?

The child - the parent or carer - both the child and the parent or carer together

12-15 year old survey questions

You are taking part in a research study. Thank you!

Research improves health for everyone. Will you tell us more about what it was like to take part in research? We want to know about what we’re doing well and things we can do to make taking part in research better.

You don’t have to answer these questions. You won’t be asked for your name or personal details. Anything you say will be kept private and no one will know which answers are yours.

This survey is for ages 12 to 15.

The information I got at the start of the research was easy to understand

Very easy - easy - neutral - hard - very hard - I don't remember

I always knew what was happening with the research

Strongly agree - agree - neutral - disagree - strongly disagree

I know how I will get the results of the research

Strongly agree - agree - neutral - disagree - strongly disagree

I know who to talk to from the research team if I have any questions

Strongly agree - agree - neutral - disagree - strongly disagree

The research team made me feel valued

Strongly agree - agree - neutral - disagree - strongly disagree

The research team always treated me with kindness and respect

Strongly agree - agree - neutral - disagree - strongly disagree

I would take part in research again

Strongly agree - agree - neutral - disagree - strongly disagree

What did we do well?

Free text box

What could we do better?

Free text box

How long have you been in the research?

Less than three months - at least three months but less than one year - at least one year but less than three years - three years or longer - not sure

Is this the first research study you have taken part in?

Yes - no

Who is answering these questions?

The child - the parent or carer - both the child and the parent or carer together

"It's Okay to Say No" survey questions

We value the opinion of everyone asked to participate in research. As you said ‘no’ to a research study today, we would appreciate your support and value your feedback.

Understanding the reasons why people don’t wish to take part will help us to provide better opportunities to get involved in the future, and improve the way we approach people about participating in research studies.

This questionnaire should only take a few minutes to complete.

Any feedback you provide is anonymous so you will not be able to be identified, and will only be shared with the research team.

Please type in the box below the reasons you decided not to take part in the study today.

Free text box

Would you be willing to participate in other research opportunities in the future?

Yes - no