Patient and Public Representative - Wessex
Base: Hedge End/ Home
Salary: Time for attendance at meetings and travel will be reimbursed
The National Institute for Health and Care Research (NIHR) is funded through the Department of Health and Social Care to improve the health and wealth of the nation through research. The NIHR Clinical Research Network (CRN) is the research delivery arm of the NIHR, providing funding and resources (for example, research nurses) for high-quality delivery of health and social care research. The NIHR CRN covers the whole of England and is divided into 15 local networks, each covering a separate geographical area.
The NIHR CRN Wessex (referred to from this point as the Network) is hosted by University Hospital Southampton NHS Foundation Trust and works with NHS trusts, GP practices and other community partners to deliver health and social care research in a flexible and responsive manner that is in keeping with the NIHR’s objectives. Patient and Public Involvement and Engagement (PPIE) within research is an important part of the work of the Network. Involving patients, carers and service users helps to improve the quality and relevance of our research.
The Executive Group
The Executive Group is composed of senior (executive level) members of NHS organisations and Clinical Commissioning Groups (CCGS) within the Network. Its purpose is:
- To oversee the work of the Network,
- Approve financial plans and annual plans and reports,
- Monitor Network performance against our annual objectives
The Executive Group is the body to which the Network is accountable at the local level. We would like to appoint a Patient and Public Representative on the Executive Group to represent the views of patients and the public at the most senior level within the Network.
The role of a Executive Group Patient and Public Representative
You will work closely with the PPIE Lead and Chief Operating Officer to represent the Network at the Executive Group. You will have the opportunity to work with senior NHS executives and gain a greater understanding of how local NHS organisations work collectively to deliver research for the benefit of the local population. There will be additional opportunities to work with the PPIE Lead and other patient groups and research volunteers within the Network to develop PPIE projects and plan related events.
- Attend monthly Executive Group meetings. We ask that you attend on time and stay for the duration of meetings (up to 2 hours). Meetings may be held virtually and you will be notified of this in advance.
- Provide a patient/public perspective and help to share good practice in patient and public involvement within the Network.
- Contribute to the discussions to help guide decisions and recommendations.
- Set aside 1-2 hours to read relevant paperwork before meetings and be prepared to comment.
- Maintain confidentiality of group discussions.
- Advocate and ensure the Executive Group is focused on involving and engaging patients, carers and the public.
- Work with the PPIE Lead to support national PPIE initiatives like research awareness campaigns.
- Work with the PPIE Lead to develop patient and public engagement projects and plan related events.
- Act as a link between the Network and other patient/public groups in order to foster patient/public engagement with local clinical research.
- Identify any personal needs for training or support.
- Participate in appropriate training and support activities.
- Participate in any evaluation of the role with the PPIE Lead to assist with role development.
You may also be asked to:
- Attend other relevant meetings
- Promote and represent the Network locally, regionally and nationally
- Mentor new patient and public representatives
Our responsibilities to Patient and Public Representatives
Patient and Public Representatives interested in the role will be offered an informal meeting or phone call to discuss it as part of the appointment process.
- You will be offered the opportunity to attend an induction meeting before joining your first Executive Group meeting. This will include the opportunity to discuss and identify any needs for training and ongoing support.
- Additional training will be offered and will include an introduction to the NIHR, an introduction to the research process (as required).
- Patient and Public Representatives will be offered support from the PPIE Lead by telephone/email as required.
- Patient and Public Representatives will be reimbursed for their time and supported with out of pocket expenses to attend any Executive Group meetings and related events in line with the following guidance: nihr.ac.uk/documents/reward-and-recognition-for-public-contributors-a-guide-to-the-payment-of-fees-and-expenses/12248?pr=
- Paperwork for meetings will be emailed (or posted if requested) at least one week before meetings.
The sign-up process will include completion of the relevant paperwork and a DBS check (if required). Support will be provided throughout this process.
Duration of the role
This role is available for 12 months in the first instance. A Representative who wishes to leave early is asked to notify the PPIE Lead for the Network.
Patient and Public Representatives should live in Hampshire, Dorset, South Wiltshire or the Isle of Wight, and should ideally have the following:
- Experience of reading and reviewing written documents.
- Experience of participating in formal meetings, e.g. school governor, ethics committee etc.
- Good communication and team-working skills, including the ability to listen and take part in constructive debate, to present views succinctly and to respect views expressed by others.
- Confident user of email, internet and word processing packages.
- Ability to travel to the venue of Executive Group meetings (Hedge End, Southampton).
- Experience of health services or research as a patient, a carer, an advocate or as a representative of patients and carers.
- An understanding of the role of, and interest in health research.
- Willing to become familiar with research and medical language.
- Willing to become familiar with, and help to support the broad objectives of the Network.
- Willing to become familiar with the relevance of patient, carer and public involvement in the work of the Network.
Declaration of Interests
All Executive Group members are required to declare if they have any interests that might be in conflict with the work of the Network. A conflict of interest does not stop you from being a member of the Executive Group. However, it does mean that you cannot take part in any discussions or decisions made on a project/issue where you have a conflict of interest. If you need guidance on what may represent a conflict of interest, please contact the PPIE Lead.
Executive Group members must not communicate any information that they learn as a result of being a member of the group. As a matter of routine, all Executive Group papers should be regarded as confidential unless marked otherwise. There may well be occasions on which Executive Group members are specifically asked to share information within their own communities or seek the opinions and views of others. If you are unclear about whether or not information that you have access to is confidential or not, please ask us.
To be considered for this role please send a short statement (no more than one side of A4) outlining why you would be interested and how you fulfil the role outline to:
Alex Jones, Research Delivery Manager: email@example.com
Closing date: 30th May 2022
Interview date: TBC - June 2022