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Patient story: Adam's Story: "It gave me more insight into the condition"

Adam, 38, has lived in Bristol for about 13 years. A sound engineer, he travels far and wide for work.

“My condition is called psoriatic arthritis which is a form of rheumatoid arthritis which I’ve had since my early teens. Symptoms include flaky skin on the knuckles and the knees. This never really stopped me doing what I wanted to do until about five or six years ago when I started to get aches and pains in my thumb joints. I didn’t do anything about it for a long time but then it started affecting my work as it became painful. My GP referred to a specialist in Bath.

“At the hospital I was approached by Dr Tillet, who gave me loads of information about the study and asked me to consider taking part. There was a Facebook group with other patients.

“They still don’t know why my condition happens. I felt that by taking part it could help someone else. When I was first diagnosed they seemed to have lots of creams but they didn’t seem to do very much for me. There now seems to be quite a lot of advances in medicines for it since ten or twelve years ago.

“I had not done any studies like this before so I didn’t know what to expect really. It was actually a regular questionnaire about my skin condition and my mood, that kind of thing. There was a lot of repetition but I understand why. It was quite interesting because of the questions that were asked. There were sections on how the condition can affect mental health which I never really knew before. It gave me more insight into the condition.

“There were sections on how the condition can affect mental health which I never really knew before. It gave me more insight into the condition.

“I’d probably take part in research again if it was offered. It’s the idea of helping out and contributing to the cause of improving healthcare and treatment. I guess the more people that take part in research, the more researchers can fine tune and focus the research.”

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