Patient and Public Involvement and Engagement are distinct activities, which can both form an important part of the research process.
Patient and Public Engagement (PPE) is when research information is presented or disseminated to the public. This forms part of the wider Stakeholder Engagement process and is a good way of ensuring that research results reach a wider audience as well as evidencing public interest and attitudes. Examples of PPE are:
INVOLVE defines Patient and Public Involvement (PPI) in research as “research that is carried out with and by patients and the public, not to, for or about them” (www.invo.org.uk). This means that rather than being involved just as participants, patients and the public are actively involved in research design and delivery, and decisions about research include the patient and public perspective. Examples of PPI in research are:
The Study Support Service facilitates the development, set-up and delivery of clinical research studies in the NHS in South London. As part of our study support offer, the PPIE team is available to offer potential ways to include PPI and PPE in your study, provide advice on management and budgeting for PPIE and refer you to appropriate organisations for further support. You can also read our guidance for PPIE in research and find out about the Study Support Service here.
For the best possible outcome, we strongly recommend you contact us as early as possible. You can read about the Study Support Service early engagement offer here.
This short video explains how researchers at the University of Bristol have involved people with experience of knee pain in the STAR project.
You can read more PPIE stories on our case studies page.