I am retired and was a carer for my mum until March 2016 when she died after living with vascular dementia for many years.
As a result of my experiences with her, I became a Dementia Friend and then trained as a DF Champion. I deliver sessions locally, trying to raise awareness and more accurately inform individuals and communities about the disease and how, with more understanding and research we can all help to eliminate the stigma around dementia thus making discussions and decisions less traumatic.
The NHS would not function without research. It is a core area and responsibility. Through research, professionals shape our futures; they need the funding and recognition to use their skills to find new treatments so that, as a nation, we can benefit from researchers skills and experiences, and lead the world in improving people's’ lives.
As a Join Dementia Research (JDR) Champion, I have assisted at events promoting dementia research and am also a participant in a study myself.
Come and join us! We need you!
Find out more about the full story of Anne's journey in research here.
This five-minute video created by HealthTalk features interviews with the members of a patient advisory group about their experiences of being involved.
This short video explains how researchers at the University of Bristol have involved people with experience of knee pain in the STAR project.
You can also find other news stories from the CRN South London about patients and the public here, or explore the different research opportunities for patients and members of the public by following the links below: