Here are the stories of some patients who participated in clinical trials, sharing their scenarios and the impact of patient and public participation in clinical research:
Ellie Herrington’s mother was diagnosed with bowel cancer and entered clinical trials in the hope of finding a cure.
“For her and for us being as a family, being involved in the clinical trial gave us hope…My mum also knew that there are other things that come out of clinical trial, is knowledge. Even if it didn’t directly benefit her, it was part of a building block of knowledge that could help patients in the future”. “Feeling like all of a sudden you took part in a community of people and working together to solve very difficult problems, was very humbling.”
Graham Reeder was a teacher in Southend, who was experiencing symptoms such as swollen fingers and difficulty to sleep, before eventually being diagnosed with rheumatoid arthritis.
"Being on the trial was an amazing experience. I can understand people having reservations but I am very much one of those types of people who knows that they (the staff) are giving them (the medication) to me because they know what they are doing, and I put a lot on trust in these people, as I hope parents put a lot of trust in me when I was teaching their children.”
Jeff Pollock was recommended a clinical trial after having a stroke.
"The trial didn't involve taking any medication, but a new way of moving and training my body to move. The clinical trials have helped a lot and now I can do things I couldn’t do after the stroke. I feel fantastic about taking part!”
Stan Herbert was experiencing constant regurgitation, even in the middle of the night, and found out that he had Helicobacter pylori (H. pylori).
"My trial was a success, I haven't experienced any gastric refluxes since having the treatment. I believe research is very necessary, and if we all help a little bit, it helps to get a lot of information together, which we can use to design better treatments.”
Helena Walsh works in research and was devastated when her own mother was diagnosed with incurable cancer.
"The mere offer of a clinical trial instilled so much hope in my mum; hope to just live longer. She was seen more regularly and by the same doctor, as clinical trials are closely monitored; we never felt alone."