CRN North Thames
Each year, we approach patients and their carers, asking them to tell us about their experience of taking part in a research study; both the good, and the not so great.
We conduct this survey to look for ways to improve how clinical studies are delivered, and to make sure all patients have the best possible experience of being in a study. The information given is then used to understand what works best for patients, and where we can make helpful changes in the way we do things.
One example of a change that has been made since reviewing their local PRES data, is by the research staff from the Clinical Research Facility at University College Hospital who are now asking patients during their early study visits if they know who to contact if they have an issue or concern while they are on the study. They are also using the data to escalate to senior staff the fact that patients are still having to experience long waits for blood results.
Last year's (2018/19) results told us:
90% of adults in North Thames had a 'good' or 'great' research experience - a 2% increase on 2017/18
1,337 adults completed the survey
Nine out of 10 adults said they would take part in research again in the future
81% of respondents found out about the research study they were on thanks to their doctor or nurse, and 91% of people knew who to contact if they had a question or concern throughout their participation in the study they were enrolled on.
This year, for the first time, children between the ages of five and 16 were surveyed
77.5% of children said they would take part in research again
If you or your child took part in research over the last year, we'd love your help with our new survey for 2019/20.
To view or complete a survey, you can find them online - just click on the link below for the right survey for your age group. These will be live from September 16 2019.
Please note: The surveys use the words ‘research study’ to describe all types of studies whether they be observational, questionnaire studies or more complex treatment trials.