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Patient Research Experience Survey results 2019/20 - CRN Greater Manchester

 

Contents

Greater Manchester patient responses - data overview 

Which health area was the study in?

Meningitis - 908
Cardiovascular - 119
Diabetes - 94
Lung - 64
Cancer - 103
Breast cancer - 45
Renal - 37
Urology - 40
Prostate cancer - 38
Neurology - 21
Parkinson’s - 37
Not stated - 20
Dementia - 20
Surgery - 18
Melanoma - 18
HIV - 17
Stroke - 17
Oncology gynae - 15
Dermatology - 14
Lung cancer - 14

 

I was given all the information I needed in relation to the study.

Yes - 1,033
No - 6
Somewhat - 25
Not sure - 9

 

How old are you?

0 - 16: 95 (3.8%)
17 - 24: 934 (37.1%)
25 - 44: 270 (10.7%)
45 - 64: 586 (23.3%)
65 - 79: 547 (21.7)
80+: 84 (3.3%)
Prefer not to answer: 4

 

How did you find out about this study?

From a doctor/nurse/practitioner: 1,206 (47.9%)
Someone from the research team running the study: 577 (22.9%)
From college/school: 523 (20.75%)
A poster or leaflet: 162 (6.4%)

Social media or website: 87 (3.5%)
Be Part of Research (formerly known as UKCTG): 74 (2.9%)
Research for the Future: 62 (2.5%)
Join Dementia Research: 7 (0.3%)

 

It is important to me to know the overall results of the research study. (rated on a scale of 1 to 5, where 1 is strongly disagree and 5 is strongly agree)

Strongly disagree
1: 59 (2.3%)
2: 58 (2.3%)
3: 407 (16.2%)
4: 646 (25.6%)
5: 1,350 (53.6%)
Strongly agree

 

I had / am having a good experience taking part in research. (rated on a scale of 1 to 5, where 1 is strongly disagree and 5 is strongly agree)

Strongly disagree
1: 30 (1.2%)
2: 30 (1.2%)
3: 212 (8.4%)
4: 527 (20.9%)
5: 1,721 (68.3%)
Strongly agree

 

I would be happy to take part in another research study. (rated on a scale of 1 to 5, where 1 is strongly disagree and 5 is strongly agree).

Strongly disagree
1: 66 (2.6%)
2: 66 (2.6%)
3: 293 (11.6%)
4: 497 (19.7)
5: 1,598 (63.4)
Strongly agree

 

Before taking part in this research, I was fully aware of other research opportunities available. (rated on a scale of 1 to 5, where 1 is strongly disagree and 5 is strongly agree).

Strongly disagree
1: 461 (18.3%)
2: 426 (16.9%)
3: 599 (23.8%)
4: 337 (13.4%)
5: 697 (27.7%)
Strongly agree

 

Waiting times for my research appointments have been acceptable. (rated on a scale of 1 to 5, where 1 is strongly disagree and 5 is strongly agree).

Strongly disagree
1: 29 (1.2%)
2: 25 (1%)
3: 331 (13.1%)
4: 503 (20%)
5: 1,632 (64.8%)
Strongly agree

 

Which gender do you identify with?

Female: 1,354 (53.7%)
Male: 1,108 (44%)
Transgender: 4 (0.16%)
Prefer not to answer: 43 (1.7%)

 

Which best describes your ethnic background?

White: English/Scottish/Welsh/N Irish/British - 2,077 (82.4%)
White: Irish - 23 (0.9%)
Asian or Asian British: Pakistani - 88 (3.5%)
Black British: African - 44 (1.7%)
Other white background - 38 (1.5%)
Prefer not to answer - 35 (1.4%)
Mixed: White and black Caribbean - 15 (0.6%)

 

Which best describes your current employment status?

Student - 862 (34.2%)
Employed - 673 (26.7%)
Retired - 657 (26.1%)
Unemployed - 100 (4%)
Disabled / not able to work - 84 (3.3%)
Prefer not to answer - 48 (1.9%)
Other - 42 (1.7%)
Homemaker - 41 (1.6%)
Looking for work - 12 (0.5%)