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CRN North Thames PRES Action Plan 2021

Contents

PRES topic: The aspect of participant experience that you have identified as a focus for CI using PRES results

Evidence and information: What information do you have from PRES about this topic- and what other information and evidence do you have about the issue

Owner: Who within the improvement team listed above has the lead responsibility for ensuring the CI project is delivered

Actions: What you will do to find out more about the root of the issue identified by PRES so that can develop an improvement approach

Improvement Issue: This should be completed after the Actions have been completed and should be a short statement summarising the findings around what has caused the issue identified within PRES

Improvement Goal and Actions: A short statement stating what the improvement team intends to do to address the issue identified and what the aim of the improvement project is

Review date: When the Improvement team will review progress to determine if the issue has been successfully addressed - this should be reasonable and based on the complexity of the improvement issue and goal

Update: What the outcome of the improvement project has been at the date of the review- including a summary of any changes

Training linked to improved communication Feedback from 265 participants on Novavax Covid vaccine trial highlighted some concerns around poor information. Nargis Hemat, Lead Research Manager, Royal Free Hospital. To provide comprehensive training for all staff to ensure they are confident in relating trial related issues to trial participants.   To ensure research staff are adequately trained in the future to ensure all trial participants receive clear information and answers during their trial visits. This will be reviewed by checking the comments from future trial participants after they complete PRES, from end April 2021 onwards.  
Improving information to participants prior to starting Feedback from 265 participants on Novavax study at the Royal Free indicated unclear messages about some aspects of the study e.g. "Clearer information that app was only for if I had symptoms?" Nargis Hemat, Lead Research Manager, Royal Free Hospital. To produce a Summary sheet to be given to participants as an additional instruction tool for app usage on trial.   By checking PRES feedback early on for new trials, the site can address issues to ensure future participants are given all the information they need going forward. Review PRES feedback ongoing, participants being given PRES day 21 by the end of April 2021 for new Covid vaccine trial.  
Produce a feedback form for participants Using qualitative feedback from 153 responses from COV002, COVAC1, ComCov, Provent, Stormchaser, and grouping the ??Improvements that could be made?? questions into categories UCLH CRF Manager and her team To produce a feedback form to give to participants ? expect to be ready by mid April 2021. The feedback form will be addressing things like:communication, waiting times, scheduling appointments etc   To produce a feedback form to give to participants addressing which previous participants raised. New form to be given to vaccine participants from end April 2021. Review PRES data by end Q3 2021 (will be giving PRES from August to all Com-voc participants).  
To produce a digital dashboard for PRES 2021/22 Sites would clearly benefit from reviewing their respective PRES data as and when they wish rather than waiting for the PPIE Lead to e-mail the data to them. CRN SL BI team and CRN NT BI team. With input from PPIE Lead NT, the BI manager from SL is working on a ODP App between the two networks which will incorporate the PRES data.   To launch the App before the end of April 2021 and to have given the PRES leads access. End Q1 2021.  
Increase awareness of who to contact and increase awareness their Trust support research widely The proportion of participants who agreed or strongly agreed they knew who to contact if they had a question or concern throughout the study reduced from 96% to 88% between PRES 2018 and PRES 2019, therefore the site wanted to work on reversing this trend. Although the figure for the question: "Were you aware your health care provide conducted research before you were first offered the opportunity to take part in research" increased from 35% to 41% from the previous PRES, BHR wanted to work on increasing this figure to >50%. Ben Sartoris, Research and Innovation Patient Engagement and Communications Officer Research Department Barking, Havering and Redbridge University Hospitals NHS Trust. To produce small contact cards which have the name and number of the research nurse. Also to have a dedicated R&D page on their trust's website They are also collaborating with the Patient experience team to explore setting up a research based voluntary role to help spread awareness around the hospital.   To produce the contact cards and ensure they are being used by all research staff. To have produced a dedicated R&D page on the trust website, which is easily accessible to patients and the public. End Q3 2021.  
Being mindful of the language used by staff around research participants Following one or two comments on the PRES survey (2019/20), on patients not being happy being referred to as trial recruits or numbers. This Partner Organisation preferred not to be named. When discussing trial issues including patients recruited to trials, they now ensure the office door is shut and they are more mindful of what they say and when.   To ensure the office door is always closed when research staff are discussing all issues relating to patient recruitment. End Q1 2021.  
Increase awareness around the fact they are a GP practice which takes part in clinical research and listens to patient?s views about their experience. To increase awareness further to surgery patients that the practice support research and listen to their patients' views on their experience of having taken part in research by inviting all patients who support research to complete a PRES survey. The Primary care team in Luton, Essex & Hertfordshire in collaboration with their local GP practices. The primary care team proposed that CRN NT come up with a slide for the TV screens in GP?s waiting rooms, or something official to post on Twitter about their practice being involved in research and also PRES to reinforce both messages- offering research and listening to patients views. In addition, one practice commented that they will have an improved research page added to the practice website, that will offer patients the opportunity to take part.   CRN NT Comms to share with the team appropriate slides for their waiting rooms and also posts they can use on the practice Twitter account demonstrating they support research and also listen to participants' feedback. In response to the other comment, to check this practice now have a dedicated page on its website focusing on research. End Q2/Q3 2021.  
To ease frustrations from long waiting times Feedback on the children's PRES surveys from PRES 2019/20 Hafiza Khatun - Children's CRF, Barts Health and Fariha Rahman - Patient Research Champion Barts Health. To make sure a patient fully realises how long a possible visit could be (allowing for factors beyond our control such as pharmacy, bloods etc.). When patients and families know it will be a while, they can come prepared with things to entertain themselves. To ensure they tell patients and families how long the visit will take so they can be prepared. This also allows them to determine how long they should take off work/school. They have also updated their selection of toys for children to play with while they are waiting which keeps the younger ones entertained for longer especially when they have to be at the hospital for many hours.   PPIE Lead to check with the team this is now being done. End Q2 2021.